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ISPOR Taxonomy of Patient Registries: Classification, Characteristics and Therms

ISPOR Taxonomy of Patient Registries: Classification, Characteristics and Therms

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Description
What exactly is a patient registry? How is it different from a randomized controlled trial? Who are the stakeholders in patient registries? What do you do about missing data? How do you ensure quality? The ISPOR Taxonomy of Patient Classification, Characteristics and Terms demystifies the world of patient registries by providing a working definition and describing distinguishing characteristics of a patient registry. It also defines terms used in the design, development, and implementation of registries and the terms used in the analysis, reporting and publishing of registry data. Each term includes a brief definition, a broader explanation, the associated values & uses, and concludes with a discussion of issues or conflicts related to the term. The Taxonomy's terminology sections provide an overview of patient registries from start to finish, leading the reader chronologically through the process of registry design, development, and implementation. Terminology on registry data is organized similarly with initiation of the analysis plan through reporting and dissemination of registry-based studies. In this manner the reader will understand all the steps involved and be able to better plan registry development and research. The Taxonomy will contribute to standardizing the language used in the patient registry field and improve registry development and research. The ISPOR Patient Registry Special Interest Group developed this book for health care professionals, students, decision makers, and outcomes researchers.
Product details
Binding:
Paperback
Publication Date:
2013-01-01
Publisher:
ISPOR
Languages:
Published: English
ISBN10:
0974328944
Weight:
458 g
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