Placeholder text

Go to cart

Extreme Caregiving

By Lisa Freitag

Extreme Caregiving

By Lisa Freitag

0 - Default Title
Description
Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring�s lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, from the care they provide to the challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory. This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework, it isolates the various tasks involved and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide for their child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving. Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
Product details
Binding:
Paperback
Edition:
1
Number of Pages:
274
Release Date:
2017-11-09
Publication Date:
2017-11-09
Publisher:
OXFORD UNIV PR
Languages:
Original: English
ISBN10:
0190491787
ISBN13:
9780190491789
GPSR Manufacturer Reference:
[email protected]
Weight:
421 g
Height:
156 cm
Width:
234 cm
Thickness:
15 cm
Buy on Amazon
Currently sold out